Thursday, May 20, 2010

Good News!

Maccoy had his 1 month follow up with Dr.Kaine his Cardiologist yesterday, he also had a echo and ekg. Dr.Kaine was very pleased with his test results and the surgery itself. He has a small leak above the VSD patch about 1mm (tiny) which he believes will heal over in time! He also has some Backflow(pulmonary insufficiency) but that is normal in TOF kids who have been repaired. He doesn't have a "normal" heart it is repaired so it will have little "problems", but for a repaired heart it sure looks GOOD!! Dr.Kaine is optimistic that by the time Maccoy needs a valve replacement it will be able to be done through a Cardiac Cath! So he believes there will not be another Open Heart Surgery in his future! I find myself even a month after surgery still sighing with relief that it is over and that it went so well! I can't believe it! We will continue to see Dr.Kaine every 3 to 4 months for a while but eventually Maccoy will be released to annual visits! At these visits they will do a echo and ekg checking for the size of the right ventricle. When the size starts to increase and he begins to have symptoms like getting tired from activity that didn't tire him before, then we will start thinking about the valve replacement. Dr. Kaine believes this won't be until teenage to adult years!!! We are so lucky/blessed to have our beautiful boy here with us. I can't think of the words to express how truly greatful we are for Dr.OBrein and his staff at Childrens Mercy and for our wonderful Cardiologist Dr.Kaine and nurse practitioner Pam Finn for walking us through this process...

3 comments:

Anonymous said...

Grandma. that is wonderful. so happy for you maybe we will get to see you all soon. Maxton birthday is june 13th.we love you all grandma Barb

Anonymous said...

Grandma, wonderful news. so happy foryou. maybe we will get to see you soon as Maxton birthday is June 13th.miss seeing you. we love you all.grandma barb

Anonymous said...

Great news! Soooo happy to hear that all is going well, and future surgeries are FAR away and less invasive. Can't wait to hug and kiss that sweet baby boy SOON! Aunt Val